Better the hard truth, I say, than the comforting fantasy. Carl Sagan, American astronomer
I recently had the opportunity to talk with a honest, straight forward, 60-something daughter whose mother has dementia. She said her mother is belligerent, sharp-tongued, even mean at times. I asked her if this behavior is the result of the dementia. “No,” she replied, “she’s always been like that.”
Not all mothers, dead or alive, were/are sweet, loving, caring people. It is just fantasy, as Sagan says, to believe so. Sometimes when people die they become “saints” in our memories. Hiding or denying real experiences and feelings slows recovery and keeps us from being our authentic selves.
Affirmation: I am a gentle truth teller.
Coaching questions: Is there some truth telling you need to do about someone in your life? How can you move towards being truthful with yourself?
Forgetfulness is a form of freedom. Kahill Gibran, Lebanese-American writer, poet.
How often do we say, I forgot….the keys, the sweater, the name, the birthday, the number? For most of us of a certain age, some forgetfulness is routine. But what about those whose past has slipped away, those whose last five minutes are gone?
As I interviewed daughters for my book on mother loss, I found it particularly heart-rending when I talked to daughters who are losing or have lost their mothers to Alzheimer’s disease. One woman said, “My mother is lost but not gone.” This mother has forgotten her daughter and everyone else who was important to her yet she is still alive and may live for many more years. One daughter’s story exemplified Gibran’s quote. She said, “My mother used to have great anxiety and worry. As a result, she was often angry and depressed. Now, because of her dementia, she is free of worry and is experiencing joy.” This daughter knows her mother’s situation will worsen but in the meantime she is embracing the moment.
Perhaps you have lost or are losing your mother or other loved one to this terrible disease. I can’t imagine what pain you’re experiencing but I can stand beside you and support you through it.
Affirmation: My brain is alive and well.
Coaching question: What does your ability to think, remember, reason mean to you? Don’t take it for granted, be grateful.
Periodic fasting can help clear up the mind and strengthen the body and the spirit. Ezra Taft Benson, American farmer, Secretary of Agriculture under President Eisenhower, religious leader
Japanese cell biologist Yoshinori Ohsumi won the Nobel Prize in Medicine in 2016 for his research on how cells recycle and renew their content, a process called autophagy. “Why should I care about this?” you’re asking. Because motherless daughters—early loss daughters and daughters who have/had mothers with dementia in particular— are frequently concerned with their health and longevity.
Ohsumi’s research shows that fasting activates autophagy and autophagy has a role in protection against inflammation, cancer, and in diseases like dementia and Parkinson’s. So, whether you simply fast from 7 pm to 7 am or take on a bigger challenge like 4 pm to 7 am or go to periodically eating two meals a day, fasting is something you might want to consider.
Affirmation: I try new things to improve my health.
Coaching questions: If you’ve fasted in the past, what was the outcome? If this is a good time in your life to bump your fasting up to a new level, today is a good day to start.
P.S. Fasting also aids in weight loss.
I want to tell you how much I miss my mother. Bits of her are still there. I miss her most when I’m sitting across from her. Candy Crowley, CNN Chief Political Correspondent
Alzheimer’s is a cruel, cruel disease. The entire family suffers. Interviewing daughters who have lost or are losing their mothers to this horrible disease has taught me much. Early-onset Alzheimer’s and other early dementias are particular horrific.
I had the honor to interview, Allie, a young daughter whose mother started showing signs of Alzheimer’s at age forty seven, Allie was eleven. This is a portion of a poem Allie wrote while she was her mother’s part-time caregiver for six years.
Allie is now a successful college student and her mother is in memory care.
Don’t You Forget About Me
I cannot say the words, they are too hard to say
I rue the moment that I fade, the memories went away
I had a beautiful mom whose mind went one day
I had a mom who was too sick to stay
I blame the disease that stripped her that way
I hate that I won’t see her on my wedding day
Affirmation: I care about the suffering of others.
Coaching questions: If you are a care-giver of someone with dementia, in what ways are you taking care of yourself? How can you reach out to others for support? Write a poem or a letter or draw a picture to help release some of your emotions.
Patience is not simply the ability to wait—it’s how we behave while we’re waiting. Joyce Meyer, author
Taking care of loved ones who are sick, dying, or have dementia requires a great deal of patience. It’s also important to be patient with ourselves and others as we process our grief.
Here are a few tips to improve your patience:
- Keep a journal about what causes you to feel impatient. Be specific. This will help you acquire greater awareness of your feelings and their cause.
- Stop and be still for a few minutes everyday with no TV, no reading, no music, no electronics. This will help quiet your impatient mind.
- Use small experiences requiring patience…i.e. waiting in line at the grocery store or the doctor’s office… to practice dealing with your impatient feelings. Read, write, think, knit…use this down time to be creative and side-step the stress caused by impatience.
- Have a back-up plan. We are never 100 percent ready for someone to die, but as you envision your life without this person, plan how you will live, consider the inner strength/faith you will call upon, you will be able to execute more patience as you deal with death and your grief in the future.
Affirmation: I am patient.
Coaching questions: Think of patience as an exercise, practicing a bit every day helps you to achieve a stronger peace of mind. What will you do today to exercise your patience muscle?
The gradual losses experienced by caregivers can lead to sadness, depression, anger, guilt, sleeplessness and other physical and emotional problems. Family Caregiver Alliance Site
Caregivers are frequently referred to as heroes, even super-heroes. But they aren’t. Caregivers are not super-human or intended to be super-heroes. They are simply human beings doing their best to take care of someone they love whose brain is not working properly. Perhaps they may wish they had super powers or mystical abilities but to stay sane they must acknowledge that they can’t fix all the challenges that accompany a dementia diagnosis.
The Family Caregiver Alliance recommends that a caregiver identify her losses, her feelings about the losses and her corresponding grief. The Alliance also recommends keeping a journal or gratitude journal, attending support groups, and doing relaxation exercises.
Affirmation: I take care of myself as I take care of another.
Coaching questions: Whether you are a caregiver or not, in what ways do you try to be a super-hero? How’s that working for you? If you are a caregiver, in what ways do you take care of yourself?
A lot of people underestimate rest, especially sleeping and recovery time. Jason Day, Australian professional golfer.
Did you know that you have a brain-cleaning crew that works the night shift only? While you are sleeping, your brain’s glymnphatic system flushes cerebrospinal fluid through your gray matter to remove proteins that accumulate during the day.
If you deprive yourself of restorative sleep, waste begins to accumulate in the brain and causes a loss of neurological function. In the short term, this might mean poor memory or absent-mindedness. In the long term the trash buildup may be a contributing factor to dementia and Alzheimer’s. Sleep isn’t a luxury.
Affirmation: I get good sleep.
Coaching questions: How much sleep do you get? How much do you need? What’s keeping you from getting the sleep you need for maximum health?